I thought I would list my diagnoses, just for fun.
#InterstitialCystits (aka irritable bladder)
#MCAS (that's Mast Cell Activation Syndrome, aka histamine intolerance/ overproduction)
#AiWS Alice in Wonderland Syndrome
Additionally, kid3 has #T1D Type One Diabetes
Never a dull moment.
New to this instance today.
I'm a Londoner living in #Cornwall.
I'm a Scandophile and speak #Swedish, started a degree in Scandinavian Studies at #UCL before I got ill.
I'm interested in so many things, including language, history especially #medieval, have very eclectic musical tastes...
Fantastic beach art by nature artist James Brunt
My husband went looking for the mobile library today but couldn't find it.
We realised he was looking in the wrong place. The place it stops is a very strange place for it to park, at the bottom of a hill the other side of the village - way too far for me to walk to, let alone walk back from :(
Such sad news about #BernardCribbins. He was a national treasure. We have loved him since Dalek Invasion Earth, the Railway Children and the Wombles.
Persephone by Kelliana 🎵 from the album Lady Moon
Via #Pagan #Folk music playlist 🎵 on Spotify
I haven't talked much about my health here for a while, because I mostly use social media for escapism.
I became unwell in 2003. It took 10 years to get a diagnosis.
I was diagnosed with #MEcfs in 2013 the #Fibromyalgia in 2015.
It is a very complicated health puzzle. The #RCCX gene cluster theory by Dr Sharon Meglathery provides some clues, connection with #EDS
Additionally I had a head injury back in 1983 which I believe may be relevant. Plus Mono/ glandular fever in 1991.
MECFS sympton: temperature dysregulation
This is a symptom I experience a lot, but you don't always hear much about it. ME Action have written a post on temperature dysregulation which I thought might be helpful for others https://www.meaction.net/2022/06/23/facetsofme-temp-dysregulation/.