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#haemochromatosis

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Becksy<p>A helpful video about <a href="https://mastodonapp.uk/tags/haemochromatosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>haemochromatosis</span></a> As a rusty myself, it is in everyone’s best interests to raise awareness of the most common genetic condition in Europe. <a href="https://mastodonapp.uk/tags/medical" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>medical</span></a> <a href="https://mastodonapp.uk/tags/health" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>health</span></a> <a href="https://mastodonapp.uk/tags/blood" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>blood</span></a> <a href="https://mastodonapp.uk/tags/genetics" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>genetics</span></a> <a href="https://mastodonapp.uk/tags/gh" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>gh</span></a> <a href="https://mastodonapp.uk/tags/hh" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>hh</span></a> <a href="https://mastodonapp.uk/tags/hereditary" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>hereditary</span></a> <a href="https://www.facebook.com/share/v/5468PX2uELSFCHKD/?mibextid=WC7FNe" rel="nofollow noopener" translate="no" target="_blank"><span class="invisible">https://www.</span><span class="ellipsis">facebook.com/share/v/5468PX2uE</span><span class="invisible">LSFCHKD/?mibextid=WC7FNe</span></a></p>
marasawr<p>urgently needing to donate blood is such a strange state of being</p><p>like I’ve clocked &gt;3 hrs’ nap per day and had a constant headache for ~a week, and the *fix* for this is having someone siphon ~13% of my blood volume into a plastic bag </p><p>never stops being weird <a href="https://mastodon.social/tags/haemochromatosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>haemochromatosis</span></a> <a href="https://mastodon.social/tags/RustiesOfMastodon" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RustiesOfMastodon</span></a></p>
marasawr<p>yup iron saturation at 75%; serum iron 2x high normal that’ll do it 😬<br><a href="https://mastodon.social/tags/haemochromatosis" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>haemochromatosis</span></a> <a href="https://mastodon.social/tags/RustiesOfMastodon" class="mention hashtag" rel="nofollow noopener" target="_blank">#<span>RustiesOfMastodon</span></a></p>
Stephen McGann<p>Hiya,</p><p>Haemochromatosis UK - a charity of which I’m patron- launches a health check for <a href="https://mastodon.me.uk/tags/Liverpool" class="mention hashtag" rel="tag">#<span>Liverpool</span></a>’s most common, undiagnosed genetic condition - <a href="https://mastodon.me.uk/tags/haemochromatosis" class="mention hashtag" rel="tag">#<span>haemochromatosis</span></a> - this week.</p><p>It’s hoped to reach over 300,000 households across <a href="https://mastodon.me.uk/tags/Merseyside" class="mention hashtag" rel="tag">#<span>Merseyside</span></a> this month. I carry a gene variant for the condition myself. It’s easy to test for, and effective to treat, but dangerous if undiagnosed.</p><p>If you’re in the area, look out for it :-)</p><p>More info here: <a href="https://www.haemochromatosis.org.uk/news/haemochromatosis-screening-in-liverpool" target="_blank" rel="nofollow noopener" translate="no"><span class="invisible">https://www.</span><span class="ellipsis">haemochromatosis.org.uk/news/h</span><span class="invisible">aemochromatosis-screening-in-liverpool</span></a></p>
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