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Jan R. BoehnkeRehabilitation is often criticised for its focus on physical and functional recovery, at the expense of recognising the profound social and psychological impacts of illness and injury: <a href="https://www.frontiersin.org/journals/rehabilitation-sciences/articles/10.3389/fresc.2025.1665527/full" rel="nofollow noopener" translate="no" target="_blank">https://www.frontiersin.org/journals/rehabilitation-sciences/articles/10.3389/fresc.2025.1665527/full</a><a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/PersonCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PersonCentered</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener" target="_blank">#HRQL</a>

Jan R. BoehnkePerspectives of service providers, caregivers and adolescent patients in this study suggest that if patients are asked to complete PROMs, there is a duty of care for this information to be reviewed and acted upon: <a href="https://link.springer.com/article/10.1007/s11136-025-03996-x" rel="nofollow noopener" translate="no" target="_blank">https://link.springer.com/article/10.1007/s11136-025-03996-x</a><a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/EQ5D" class="mention hashtag" rel="nofollow noopener" target="_blank">#EQ5D</a> <a href="https://mastodon.social/tags/FeedbackSystems" class="mention hashtag" rel="nofollow noopener" target="_blank">#FeedbackSystems</a>

Jan R. BoehnkeRoughly 2 weeks left to submit to JPRO's <a href="https://mastodon.social/tags/SpecialIssue" class="mention hashtag" rel="nofollow noopener" target="_blank">#SpecialIssue</a> "Patient and Public Involvement and Engagement" <a href="https://www.springeropen.com/collections/PPIE" rel="nofollow noopener" translate="no" target="_blank">https://www.springeropen.com/collections/PPIE</a> <a href="https://mastodon.social/tags/PPIE" class="mention hashtag" rel="nofollow noopener" target="_blank">#PPIE</a>The aim is to capture the use of Patient and Public Involvement and Engagement (<a href="https://mastodon.social/tags/PPIE" class="mention hashtag" rel="nofollow noopener" target="_blank">#PPIE</a>) in Patient-Reported Outcome-related research, such as the development of PRO measures and electronic PRO (ePRO) systems, as well as the implementation of PRO measures for healthcare research and clinical practice.<a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener" target="_blank">#ISOQOL</a> <a href="https://mastodon.social/tags/HRQOL" class="mention hashtag" rel="nofollow noopener" target="_blank">#HRQOL</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/Psychometrics" class="mention hashtag" rel="nofollow noopener" target="_blank">#Psychometrics</a>

Jan R. Boehnke<a href="https://mastodon.social/tags/PersonCentred" class="mention hashtag" rel="nofollow noopener" target="_blank">#PersonCentred</a> care refers to health care that is respectful of and responsive to personal experiences, preferences, needs, goals and values of service users.Read our discussion piece on how we measure and evaluate such care and the potential place for <a href="https://mastodon.social/tags/PatientReported" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientReported</a> outcomes in it: <a href="https://www.frontiersin.org/journals/health-services/articles/10.3389/frhs.2025.1578037/full" rel="nofollow noopener" translate="no" target="_blank">https://www.frontiersin.org/journals/health-services/articles/10.3389/frhs.2025.1578037/full</a><a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener" target="_blank">#HRQL</a>

Jan R. BoehnkeA new paper discusses workflow development for ePRO symptom monitoring to support PRO(M) implementation into practice using the Action, Actor, Context, Target, Time framework: <a href="https://link.springer.com/article/10.1007/s11136-025-03995-y" rel="nofollow noopener" translate="no" target="_blank">https://link.springer.com/article/10.1007/s11136-025-03995-y</a><a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/ImplementationScience" class="mention hashtag" rel="nofollow noopener" target="_blank">#ImplementationScience</a> <a href="https://mastodon.social/tags/ParticipatoryResearch" class="mention hashtag" rel="nofollow noopener" target="_blank">#ParticipatoryResearch</a>

Jan R. Boehnke"The article focusses primarily on presenting the case for adopting ROM and is a starting point—a primer—for any person working in the field of student counselling, or psychological therapies more generally, who is considering the challenges of adopting ROM."Quote from: <a href="https://onlinelibrary.wiley.com/doi/full/10.1002/capr.12694" rel="nofollow noopener" translate="no" target="_blank">https://onlinelibrary.wiley.com/doi/full/10.1002/capr.12694</a><a href="https://mastodon.social/tags/PsychotherapyResearch" class="mention hashtag" rel="nofollow noopener" target="_blank">#PsychotherapyResearch</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/Feedback" class="mention hashtag" rel="nofollow noopener" target="_blank">#Feedback</a>

Jan R. BoehnkeThe March* issue of Quality of Life Research includes the call for papers "Quality of life dimensions in people living with mental disorders: moving beyond global scores" <a href="https://rdcu.be/ehPIy" rel="nofollow noopener" translate="no" target="_blank">https://rdcu.be/ehPIy</a>We encourage submissions of research and practice using nuanced approaches to <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener" target="_blank">#HRQL</a> & <a href="https://mastodon.social/tags/QOL" class="mention hashtag" rel="nofollow noopener" target="_blank">#QOL</a>, adopting the term “mental disorder” broadly, e.g., based on standard diagnoses or using transdiagnostic perspectives.<a href="https://mastodon.social/tags/SMI" class="mention hashtag" rel="nofollow noopener" target="_blank">#SMI</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/Psychometrics" class="mention hashtag" rel="nofollow noopener" target="_blank">#Psychometrics</a> <a href="https://mastodon.social/tags/ClinicalPsychology" class="mention hashtag" rel="nofollow noopener" target="_blank">#ClinicalPsychology</a> <a href="https://mastodon.social/tags/PsychotherapyResearch" class="mention hashtag" rel="nofollow noopener" target="_blank">#PsychotherapyResearch</a>* 👇

Jan R. BoehnkeProtocol for one of our current trials published:DIAMONDS evaluates a <a href="https://mastodon.social/tags/diabetes" class="mention hashtag" rel="nofollow noopener" target="_blank">#diabetes</a> <a href="https://mastodon.social/tags/SelfManagement" class="mention hashtag" rel="nofollow noopener" target="_blank">#SelfManagement</a> intervention for people living with severe mental illness <a href="https://bmjopen.bmj.com/content/15/3/e090295" rel="nofollow noopener" translate="no" target="_blank">https://bmjopen.bmj.com/content/15/3/e090295</a>Registration incl. SAP at ISRCTN22275538 <a href="https://www.isrctn.com/ISRCTN22275538" rel="nofollow noopener" translate="no" target="_blank">https://www.isrctn.com/ISRCTN22275538</a><a href="https://mastodon.social/tags/SMI" class="mention hashtag" rel="nofollow noopener" target="_blank">#SMI</a> <a href="https://mastodon.social/tags/Multimorbidity" class="mention hashtag" rel="nofollow noopener" target="_blank">#Multimorbidity</a> <a href="https://mastodon.social/tags/ISRCTN" class="mention hashtag" rel="nofollow noopener" target="_blank">#ISRCTN</a> <a href="https://mastodon.social/tags/NIHR" class="mention hashtag" rel="nofollow noopener" target="_blank">#NIHR</a> <a href="https://mastodon.social/tags/DundeeUni" class="mention hashtag" rel="nofollow noopener" target="_blank">#DundeeUni</a> <a href="https://mastodon.social/tags/UniOfYork" class="mention hashtag" rel="nofollow noopener" target="_blank">#UniOfYork</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a>

Jan R. Boehnke9th National Patient-Reported Outcome Measures Research Conference <a href="https://www.birmingham.ac.uk/research/centres-institutes/patient-reported-outcomes/events/9th-national-proms-research-conference" rel="nofollow noopener" translate="no" target="_blank">https://www.birmingham.ac.uk/research/centres-institutes/patient-reported-outcomes/events/9th-national-proms-research-conference</a>Conference: 19th June 2025 at Uo Birmingham <a href="https://mastodon.social/tags/CPROR" class="mention hashtag" rel="nofollow noopener" target="_blank">#CPROR</a>Submission deadline: 11th AprilThe call "PROMising Futures" highlights focal areas for submissions:Innovative ways to develop and implement PROMs <a href="https://mastodon.social/tags/ImplementationScience" class="mention hashtag" rel="nofollow noopener" target="_blank">#ImplementationScience</a> <a href="https://mastodon.social/tags/ImplementationResearch" class="mention hashtag" rel="nofollow noopener" target="_blank">#ImplementationResearch</a>Presentation of PROMs to clinicians and patients <a href="https://mastodon.social/tags/Feedback" class="mention hashtag" rel="nofollow noopener" target="_blank">#Feedback</a>and the description of the clinical utility of PROMs.<a href="https://mastodon.social/tags/HealthEconomics" class="mention hashtag" rel="nofollow noopener" target="_blank">#HealthEconomics</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a>

Jan R. BoehnkeHow to select relevant items for monitoring? Case example of a pragmatic process for mapping immune checkpoint inhibitor <a href="https://mastodon.social/tags/SideEffects" class="mention hashtag" rel="nofollow noopener" target="_blank">#SideEffects</a> to items from existing item libraries ( <a href="https://mastodon.social/tags/CTCAE" class="mention hashtag" rel="nofollow noopener" target="_blank">#CTCAE</a> <a href="https://mastodon.social/tags/EORTC" class="mention hashtag" rel="nofollow noopener" target="_blank">#EORTC</a> <a href="https://mastodon.social/tags/FACIT" class="mention hashtag" rel="nofollow noopener" target="_blank">#FACIT</a> ) <a href="https://jpro.springeropen.com/articles/10.1186/s41687-025-00855-8" rel="nofollow noopener" translate="no" target="_blank">https://jpro.springeropen.com/articles/10.1186/s41687-025-00855-8</a><a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/JPRO" class="mention hashtag" rel="nofollow noopener" target="_blank">#JPRO</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/PatientReported" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientReported</a> <a href="https://mastodon.social/tags/ePRO" class="mention hashtag" rel="nofollow noopener" target="_blank">#ePRO</a>

Jan R. BoehnkeA <a href="https://mastodon.social/tags/ScopingReview" class="mention hashtag" rel="nofollow noopener" target="_blank">#ScopingReview</a> (n=6) from one of our <a href="https://mastodon.social/tags/ProfDoc" class="mention hashtag" rel="nofollow noopener" target="_blank">#ProfDoc</a> students highlights the profound impact of adenomyosis and how important a better understanding of the lived experience is to improve diagnostic pathways <a href="https://bmjopen.bmj.com/content/15/1/e087122.full" rel="nofollow noopener" translate="no" target="_blank">https://bmjopen.bmj.com/content/15/1/e087122.full</a><a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/DundeeUni" class="mention hashtag" rel="nofollow noopener" target="_blank">#DundeeUni</a>

Jan R. BoehnkeDeadline for the Annual SPR meeting extended until 12th January 2025!Enough time to get presentations, workshops, or even panels lined up and submitted!<a href="https://mastodon.social/tags/PsychotherapyResearch" class="mention hashtag" rel="nofollow noopener" target="_blank">#PsychotherapyResearch</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a>Previous post with more detail on the conference and relevant links: <a href="https://mastodon.social/deck/@jrboehnke/113639421869779869" rel="nofollow noopener" translate="no" target="_blank">https://mastodon.social/deck/@jrboehnke/113639421869779869</a>

Jan R. BoehnkeOnly a few days to go until the submission deadline for the 56th International Annual Meeting of the Society of <a href="https://mastodon.social/tags/PsychotherapyResearch" class="mention hashtag" rel="nofollow noopener" target="_blank">#PsychotherapyResearch</a> closes!Deadline: 15th Dec 2024<a href="https://mastodon.social/tags/Conference" class="mention hashtag" rel="nofollow noopener" target="_blank">#Conference</a> 25-28th June in Krakow, Poland<a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a>

Jan R. Boehnke10/x Thanks for reading in case you made it this far.I noticed that I forgot speakers' affiliations in some of the posts, so please find here again the abstract.And once again links to the book <a href="https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#" rel="nofollow noopener" translate="no" target="_blank">https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#</a>and the book review: <a href="https://rdcu.be/dXACh" rel="nofollow noopener" translate="no" target="_blank">https://rdcu.be/dXACh</a><a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener" target="_blank">#ISOQOL</a> <a href="https://mastodon.social/tags/PhilosophyOfScience" class="mention hashtag" rel="nofollow noopener" target="_blank">#PhilosophyOfScience</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a>

Jan R. Boehnke8/x The last chapter focuses on the contexts of use of <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener" target="_blank">#HRQL</a> measures (e.g., <a href="https://mastodon.social/tags/FDA" class="mention hashtag" rel="nofollow noopener" target="_blank">#FDA</a>, agencies, <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a> initiatives). Kevin Weinfurt (👇) and Rebecca Jackson discussed how even the often ignored response options reflect assumptions of how we want to represent what we are measuring!<a href="https://mastodon.social/tags/PhilosophyOfScience" class="mention hashtag" rel="nofollow noopener" target="_blank">#PhilosophyOfScience</a> <a href="https://mastodon.social/tags/Measurement" class="mention hashtag" rel="nofollow noopener" target="_blank">#Measurement</a>

Jan R. Boehnke6/x Rick Sawatzky's recorded input focused on <a href="https://mastodon.social/tags/Exchangeablility" class="mention hashtag" rel="nofollow noopener" target="_blank">#Exchangeablility</a> and discussed how the term <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a> measurement may relate to ideographic and nomothetic methods. You can find out more about Rick's work here: <a href="https://healthyqol.com/about-ephm" rel="nofollow noopener" translate="no" target="_blank">https://healthyqol.com/about-ephm</a><a href="https://mastodon.social/tags/Philosophy" class="mention hashtag" rel="nofollow noopener" target="_blank">#Philosophy</a> <a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener" target="_blank">#ISOQOL</a>

Jan R. Boehnke5/x Alessandra Basso (LSE) highlighted hermeneutic marginalisation and misrepresentation as injustices 👇An important question the book raises is how to elicit and integrate all voices and still recognising that all positions are fallible. <a href="https://mastodon.social/tags/Epistemology" class="mention hashtag" rel="nofollow noopener" target="_blank">#Epistemology</a><a href="https://mastodon.social/tags/Measurement" class="mention hashtag" rel="nofollow noopener" target="_blank">#Measurement</a> <a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/Philosophy" class="mention hashtag" rel="nofollow noopener" target="_blank">#Philosophy</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a>

Jan R. Boehnke4/x One of the core ideas for me is the notion of aiming for an <a href="https://mastodon.social/tags/EpistemicDialogue" class="mention hashtag" rel="nofollow noopener" target="_blank">#EpistemicDialogue</a> as an approach to understand and meaningfully integrate the positions of different stakeholders.“[…] epistemic dialogue is thus not to argue with others or to become self-satisfied with our own position, but rather to offer provocation in the form of questions so we can foreground and examine our own assumptions and values.” McClimans (2024, p. 105)<a href="https://mastodon.social/tags/Measurement" class="mention hashtag" rel="nofollow noopener" target="_blank">#Measurement</a> <a href="https://mastodon.social/tags/Gadamer" class="mention hashtag" rel="nofollow noopener" target="_blank">#Gadamer</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/PhilosophyOfScience" class="mention hashtag" rel="nofollow noopener" target="_blank">#PhilosophyOfScience</a>

Jan R. Boehnke1/x It was great fun to co-organise the <a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener" target="_blank">#ISOQOL</a> discussion of Leah McClimans' book" <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a> <a href="https://mastodon.social/tags/Measurement" class="mention hashtag" rel="nofollow noopener" target="_blank">#Measurement</a>: Perspectives from philosophy and health-related quality of life" <a href="https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#" rel="nofollow noopener" translate="no" target="_blank">https://global.oup.com/academic/product/patient-centered-measurement-9780197572078?cc=gb&lang=en&#</a>You can read the book review by Sebastian Rodriguez Duque here: <a href="https://rdcu.be/dXACh" rel="nofollow noopener" translate="no" target="_blank">https://rdcu.be/dXACh</a><a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener" target="_blank">#HRQL</a><a href="https://mastodon.social/deck/@jrboehnke/113315840967665589" rel="nofollow noopener" translate="no" target="_blank">https://mastodon.social/deck/@jrboehnke/113315840967665589</a>

Jan R. BoehnkeProgramme for the final day of <a href="https://mastodon.social/tags/ISOQOL" class="mention hashtag" rel="nofollow noopener" target="_blank">#ISOQOL</a> once again jam-packed*I am looking forward to chairing <a href="https://mastodon.social/tags/Plenary4" class="mention hashtag" rel="nofollow noopener" target="_blank">#Plenary4</a> "Broaden the scope: health outcomes assessment beyond PROs" with a great line-up of speakers and topics.Cologne music suggestion: Bukahara: Tales of the Tides <a href="https://www.youtube.com/watch?v=9GKmDK_EMhE" rel="nofollow noopener" translate="no" target="_blank">https://www.youtube.com/watch?v=9GKmDK_EMhE</a><a href="https://mastodon.social/tags/HRQL" class="mention hashtag" rel="nofollow noopener" target="_blank">#HRQL</a> <a href="https://mastodon.social/tags/PatientCentered" class="mention hashtag" rel="nofollow noopener" target="_blank">#PatientCentered</a>*Learn German? "pickepackevoll"

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